If I knew then what I know now, "then" being the first time I heard that Anthony had Down syndrome, my whole being would have felt a lot better about my baby and his future.
All the negative thoughts would have left me like leaves blowing in the wind. Yes, they'd be flying around me for awhile until I knew the wonder and beauty of my Anthony. Health wise, he had a low body temperture and heart rate, but his heart was in great shape. Some with DS have heart issues and need to have some surgery. Ever so grateful, we felt blessed he was healthy.
It was a rough start, and if only i knew that him having DS was not as bad as it sounds, the whole first week of life with him could've been much happier and less stressed. I wished I had knew more about that extra chromosone and every thing that comes a long with it. It's a slower way of life, and I can't imagine it any other way.
I'd rather parents of an older child with DS told new parents the news - The official diagnosis was told to us by a physician in Rhode Island Hospital whose son had Down Syndrome. Dr. Sig Puechel was the perfect person to tell us. He spoked so eloquently and happily about life with his son and after that meeting, we felt a lot better about the new road we'd be traveling in life.