Friday, October 19, 2012

If I knew then what I know now

If I knew then what I know now, "then" being the first time I heard that Anthony had Down syndrome, my whole being would have felt a lot better about my baby and his future.
All the negative thoughts would have left me like leaves blowing in the wind. Yes, they'd be flying around me for awhile until I knew the wonder and beauty of my Anthony. Health wise, he had a low body temperture and heart rate, but his heart was in great shape. Some with DS have heart issues and need to have some surgery. Ever so grateful, we felt blessed he was healthy.
It was a rough start, and if only i knew that him having DS was not as bad as it sounds, the whole first week of life with him could've been much happier and less stressed. I wished I had knew more about that extra chromosone and every thing that comes a long with it. It's a slower way of life, and I can't imagine it any other way.
I'd rather parents of an older child with DS told new parents the news - The official diagnosis was told to us by a physician in Rhode Island Hospital whose son had Down Syndrome. Dr. Sig Puechel  was the perfect person to tell us. He spoked so eloquently and happily about life with his son and after that meeting, we felt a lot better about the new road we'd be traveling in life.!/efarrellfamiglietti

Thursday, October 18, 2012

Reasons why I have not blogged....

I meant to but just let my thoughts run out of my brain before I could get them on blog. I am very unlike most writers (or bloggers), you probably all have a set schedule for when you write. I do not. I am too flighty. Even when I try to schedule it in, something comes up that detours me from Blog Street. Admittedly, I am one of those people that seems to talk more about writing than actual writing. I ready about writing yet the most writing I've done is to review books I've read. So, I guess that accounts for some form of writing.

Laziness and lack of organization is the truly one reason that holds me back. If I could just keep inside my head the thoughts I have when I do write, I'd remember, "hey, writing is fun, and it helps keep me centered." Unfortunately, that is not always the case. Plus, I have too many blogs. I'd like to condense down to one and so far so good. After not blogging at all, this is the first stop on the Blogging road and I intend to stay here.

It's not like I don't have anything to blog about. I have TONS of stuff I could write about. My family/kids, my other passions, movies, books, music, and other random things - like this blog in particular. I'd rather just write about whatever I feel passionate about at that moment. There are a lot of parents of children with Down Syndrome who have blogs that seem to be strictly about life with their child who is blessed with the extra chromosome - like my Anthony - He makes a great topic but so do my other kids and other things that come up on any given day. There's a lot to say and I am going to start writing it all down right here.

So stay tuned for more. .... I am not using my noggin very well today. What stay at home mom blogs after school? I am going to hang with my kiddos now and then head out to their last football practice of the season. Peace & Love